Terms and Conditions of Use for Cure Driven Website

The following terms constitute an agreement (the “Agreement”) between you and the Jain Foundation, Inc. (“Jain Foundation”), the operator of dysferlinregistry.jain-foundation.org (the “Site”).

The Agreement governs your use of the Site. By accessing or using the Site, you agree to be bound by the terms of this Agreement.

Site’s Mission, Registration and Sub-Type Sites

The Site provides certain information that may be of interest to visitors who want to learning more about the various sub-types of Limb Girdle Muscular Dystrophy. Additionally, the Site offers visitors who register and meet certain eligibility criteria the opportunity and access to join separate websites that each focus on a specific sub-type of Limb Girdle Muscular Dystrophy (each, a “Sub-Type Site”).

Once you have registered, you will be provided with information on how to become a member of the applicable Sub-Type Site. Please note that, in addition to these Terms and Conditions of Use, each Sub-Type Site will have its own Terms and Conditions of Use, which you must also read and accept to become a member of such Sub-Type Site. The Jain Foundation assumes no responsibility with respect to the content or use of any Sub-Type Site other than the CureDriven – 2BCured website. Only the named operator of any such Sub-Type Site has any responsibility for the contents and use of such Sub-Type Site, all in accordance with, and as limited by, its own policies, guidelines and applicable law.

Registration, Password and Login

All visitors who desire to register with this Site represent and warrant that the information they provide when registering, and all information that they subsequently provide regarding themselves, is true and accurate and not misleading.

You must maintain the confidentiality of your member password and login, and are fully responsible for all activities that occur under your password or account with or without your knowledge. If you knowingly provide your login and password information to another person, your membership privileges may be suspended temporarily or terminated. You agree to immediately notify of any unauthorized use of your membership password or login or any other breach of security.

Always use the same user name and do not impersonate others. Do not create multiple user names. User names may not reference your business, commercial web sites or trademarked names.

No Interference with Operation of Site

You may not use any robot, spider, scraper, or other automated means to access the Site or content or services provided on the Site for any purposes. You may not post content on the Site that contains any viruses, Trojan horses, worms, time bombs, spiders, or other computer programming routines that are intended to damage, detrimentally interfere with, surreptitiously intercept or expropriate any system, data or personal information. You shall not attempt to make the Site unavailable through denial-of-service attacks or similar means. You shall not use contact information provided by members, or collect information about our members, to facilitate the sending of unsolicited bulk communications such as SPAM or SPIM or allow others use of your membership account to take such actions.

Site for Non-Commercial Use Only

The Site, including the content and information contained in the Site, is for the personal use of individual registered users only and may not be used in connection with any commercial endeavors. Organizations, companies, and/or businesses may not become members and should not use the Site without express consent from Jain Foundation. Visitors or members with individual commercial interests may not solicit or overtly promote their products or services on the Site.


The Site uses cookies for certain purposes. Cookies are files that web servers send to web browsers and are stored by the web browsers. By using the Site, you consent to our use of cookies as set forth in our Privacy Policy.

You agree that you have read, understood and accept the Site's Privacy Policy. This policy explains the Site's collection of personal and non-personal information from you when using the Site and its use of and sharing of such personal and non-personal information.

This Site Does Not Provide Medical Advice

All of the materials provided on this Site are for informational purposes only and are not a substitute for professional medical advice or treatment. Always seek the advice of your physician or other qualified health provider with any questions you may have regarding your health. Never disregard professional medical advice or delay in seeking it because of something you have read on this site. If you think you may have a medical emergency, call your doctor or 911 immediately.

Claims of Copyright Infringement

If you are a copyright owner or an agent thereof and believe that any content at this Site infringes upon your copyright, you may submit a written notification by providing us with the following information: (i) an electronic or physical signature of a person authorized to act on behalf of the owner of an exclusive right that is allegedly infringed; (ii) a description of the copyrighted work claimed to have been infringed or if multiple copyrighted works are covered by a notification, a representative list of such works at our Site; (iii) a description of the location on the Site of the allegedly infringing material(s); (iv) your address, telephone number, and email address; (v) a written statement that you have a good faith belief that use of the material(s) in the manner complained of is not authorized by the copyright owner, its agent, or the law; and (vi) a written statement that the information in the notification is accurate, and under penalty of perjury, that you are authorized to act on behalf of the owner of an exclusive right that is allegedly infringed. You acknowledge that if you fail to comply with all of the notice requirements, your notice may not be valid.

Limited License

Jain Foundation grants users of the Site a limited license to view on their computer, print, or download any content made available on the site for non-commercial, personal, and educational purposes only. You may not make any commercial use of such content, either alone or in or with any product which you distribute, or copy or host such content on your or any other person’s web site or server. Nothing contained in this limited license shall be deemed as conferring any right in any copyright, trademark, trade name or other proprietary property of Jain Foundation or any other party who owns or has proprietary rights to the content, information and materials provided on the Site.

Preservation of Intellectual Property Rights

All material on this site, including, but not limited to images, illustrations and multimedia materials, is protected by copyrights which are owned and controlled by Jain Foundation or by other parties that have licensed their material to Jain Foundation. Material from the Site or from any other web site owned, operated, licensed or controlled by Jain Foundation may not be copied, reproduced, republished, uploaded, posted, transmitted, or distributed in any way. Modification of the materials or use of the materials for any other purpose is a violation of the copyrights and other proprietary rights held by the respective providers thereof. The use of any such material on any other web site, ftp server or network environment is prohibited.

International Users

Jain Foundation makes no claims that information on the Site is appropriate or may be downloaded outside of the United States. Personal information (“Information”) that is submitted to this site will be collected, processed, stored, disclosed and disposed of in accordance with applicable U.S. law and our Privacy Policy. If you are a non-U.S. user, you acknowledge and agree that Jain Foundation may collect and use your Information and disclose it to other entities outside your resident jurisdiction. In addition, such Information may be stored on servers located outside your resident jurisdiction. U.S. law may not provide the degree of protection for Information that is available in other countries. By providing us with your Information, you acknowledge that you consent to the transfer of such Information outside your resident jurisdiction as detailed in our Privacy Policy. If you do not consent to such transfer, you may not use this site.

Links to Other Websites

The Site may contain links to other websites that are not under the control of Jain Foundation. The inclusion of any link does not imply endorsement by Jain Foundation of such site and Jain Foundation is not responsible for the content of such linked sites.

Termination of Membership

You agree that Jain Foundation may, with or without cause, immediately terminate your Site membership or limit or terminate your access to the Site without prior notice. Without limiting the foregoing, the following may lead to a termination of a member's membership and use of the Site: (a) breaches or violations of this Agreement or other incorporated agreements or guidelines, (b) requests by law enforcement or other government agencies, (c) a request by you (self-initiated membership cancellation), (d) unexpected technical issues or problems, and (e) extended periods of inactivity.

Modifications to this Agreement

We reserve the right to modify this Agreement at any time, and without prior notice, by posting amended terms on this Site. We encourage you to review this Agreement periodically for any updates or changes, which will have an update effective date.


Membership with the Site is currently free. Jain Foundation Inc. reserves the right to from time to time change the terms of this Agreement and charge for membership and/or to provide additional optional services for a fee.

Disclaimer of Warranties

The Site and the content and services made available on the Site are provided on an “as is” and “as available” basis. Jain Foundation does not make and disclaims all express and implied warranties and representations, including, but not limited to, any implied warranty of fitness for a particular purpose, with regard to the Site, the Site content, or any advice or services provided through the Site to the extent permitted by law. Jain Foundation does not warrant that access to the Site or its content or services will be uninterrupted or error-free or that defects in the Site will be corrected.

The advice, recommendations, information, and conclusions posted or emailed by other members of the Site are not in any way vetted, approved or endorsed by Jain Foundation, and you use such information at your own risk.

Limitation of Liability

Under no circumstances shall Jain Foundation, its partners, contributors, agents, employees, directors, or affiliates be liable for any indirect, incidental, special, or consequential damages (even if it has been advised of the possibility of such damages) due to your use of this Site or due to your reliance on any of the content contained or the services provided on the Site.


You agree to indemnify and hold harmless Jain Foundation, its officers, employees, agents, subsidiaries, affiliates and other partners, from and against any claims, actions or demands, liabilities and settlements including without limitation, reasonable legal and accounting fees, resulting from, or alleged to result from, your violation of this Agreement.


If you register, you agree that Jain Foundation may send notices to you by email at the email address you provide when registering (or which you later update using the functionality of the Site).

Governing Law and Venue

This agreement shall be governed by the laws of the State of Washington and the applicable federal laws of the United States of America. All disputes arising under, or in any way connected with membership in or use of the Site, shall be litigated exclusively in the state and federal courts residing in the the State of Washington, and in no other court or jurisdiction. You hereby submit to the jurisdiction of the state and federal courts sitting in the State of Washington.

Miscellaneous Terms

Jain Foundation, the Jain Foundation logo, The Dysferlin Registry, 2B Empowered and 2B Cured are trademarks of Jain Foundation. You agree not to display or use these trademarks in any manner without Jain Foundation's prior, written permission.

Jain Foundation may assign this agreement at any time to a successor to its operations. You may not assign or transfer this agreement.

If any provision of this Agreement is held to be unenforceable for any reason, the remaining provisions will be unaffected and remain in full force and effect.

For any questions or comments, or to report violations of this agreement, let us know by contacting the Site’s Webmaster at patients@jain-foundation.org.